I finally have a moment to sit and reflect, so I will update
everyone on the most eventful last 48 hours. My AFI was getting very low, the
baby had lost the brain sparing effect, and was not growing as much as she
should have. The doctors all got together and had a “very long meeting” about
the situation and decided to deliver. Although I was “first in line” Wednesday
morning the surgery didn’t start until around 10am. When she was born, the
doctors said she was barely breathing. She was taken off to the NICU where they
spent the next 2 hours stabilizing her. At the same time, I had some internal hemorrhaging
that needed to be fixed so the surgery went longer than they expected. I left
the OR with a drain in place. Over the next several hours the drain continued
to fill quickly and needed to be emptied often. They were discussing the
possibility of another surgery when things B”H (thank G-d) got better. The bleeding
slowed and my hemoglobin levels started to go up. This morning they decided
that I will not need a second surgery. Thankfully, we dodged the bullet on that
one.
Meanwhile, baby girl was in the NICU with her own fight. She
was started on CPAP but could not keep her O2 levels up. It seems that she has
RDS (Respiratory Distress Syndrome, a syndrome in preemies that is pretty much
just what it sounds like). They then intubated her and gave her a round of surfactant
and put her on 20% oxygen. They later extubated
her hoping that she would be able to breathe on her own or with the CPAP. However,
she could not and they had to re-intubate. Later she was having more
difficulties. She was given a second round of surfactant and put on 40% oxygen.
She is still not being given milk (she will have to start with a feeding tube)
and is currently receiving all her nutrients via IV. She has an arterial line
in to enable fast and frequent blood draws and she is currently receiving
antibiotics. She was moved to an incubator this morning (as opposed to a
warming bed) to help better regulate her body temperature and because she is apparently
not a fan of neither the NICU environment nor of her intubation tube. The
nurses are hoping that the quieter environment will help to keep her more
comfortable.
So far all the nurses in the NICU have been very helpful,
caring and encouraging. Dov and I have an appointment with a senior doctor on Sunday
to discuss her progress and prognosis, however, in the meantime, they give me
constant updates and have gone out of their way to make sure we know what is
going on.
I have now been up to see her three times. I was able to
touch her, but will not be able to hold her until her arterial line is removed.
However, this morning at around 6:45, before shift change when everything was very
quiet in the NICU, I sat with her stroking her head and talking to her, and she
opened one eye and looked at me. I know it may sound silly, but in that moment
I felt like she was acknowledging my presence and accepting me as her partner
in this long fight we have ahead of us.
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