Please Daven for Avigayil Bas Rivka Batya.

Please Daven for Avigayil Bas Rivka Batya.

Wednesday, May 13, 2015

Good News

Avigayil is finally making progress.

We went to day hospital today and, for the first time, have only good news to report. Her blood tests all came back good. Her hemoglobin was good. Her PCO2 was good (even after an extended period on O2 alone). All her blood work came back good.

We met with the Orthopedist who said that he is happy with her and, although he wants to keep an eye on her progress and growth, he sees no reason for concern now. (That's the closest any doctor has come to saying there is nothing wrong with her!)

The gastroenterologist is happy with her progress. He says the peg is working well and healing nicely.

The physical therapist says she is really making a lot of progress. We are working really hard on movement with her and the last week and a half she has made some huge leaps forward (figuratively speaking) in her therapy.

The feeding/speach therapist gave us some new exercises to try with her. While she hasn't made much progress on eating she has started to vocalize more and that is an improvement so she was happy too.

Finally, the pulmonologist said that her x-rays are looking better (the first time I have ever heard that) and that her lungs sounded better too. He wants to start moving towards reducing her meds and weaning her from the home vapotherm. Both with happen over many months but it's a big step forward.

Overall, for the first time we feel like we are making some real progress. Everyone is generally optimistic at this point and we continue to daven that she should only move forward.