Please Daven for Avigayil Bas Rivka Batya.

Please Daven for Avigayil Bas Rivka Batya.

Friday, October 30, 2015

Update

Avigayil's situation is getting worse.  Her pco2 is very high. It gives her a pale gray color. She was switched to a stronger machine to help her breathe and they are considering admitting her to intensive care (picu). Please continue to daven for Avigayil bas Rivka Batya.

Thursday, October 29, 2015

Hospitalized

Avigayil has been officially admitted to the hospital. It looks like we will be here for a while.  She is very uncomfortable and really struggling to breathe. The virus will definitely set her back and take a while to recover from. She is at the maximum treatment. We are praying that she doesn't get any worse.

Wednesday, October 28, 2015

Starting of With a Bang

So we are in the ER. It looks like Avigayil has pneumonia and RSV.  RSV is a respiratory virus that is very dangerous for babies with breathing problems. Please keep her in your teffilos. I will try to update when possible.

Tuesday, October 27, 2015

Welcome to Winter

So, Sunday in Israel was the first day of winter.  We changed our clocks and the weather even decided to get cold and rainy. So Avigayil had to celebrate. By getting sick. Really sick. Hopefully its just a respiratory virus, but she has been having a lot of trouble breathing. We have increased the flow (pressure) on her machine to the highest level it has ever been. She is also on massive amounts of steroids, all in a bid to keep her from her first hospitalization of the season.

In other news, we went to the burn clinic today (up to 6 hospital visits in 11 days) and Avigayil's arm is doing much better. Almost all of her skin has grown back and she will be getting OT for flexibility. The doctors are very pleased.

Tuesday, October 20, 2015

As I was saying

So we went to the ER tonight. Again. This was our third trip to the hospital this week. Avigayil pulled out her G-tube  (feeding tube). She now has a temporary tube in place and we will talk to the gastro dept tomorrow to see when they can place a regular G-tube. That means trip four and Sunday's appointment at the burn clinic will be a record of 5 hospital trips in 9 days. Go Team Shore!

How to Know You Spend Too Much Time in the Hospital

So the good news is that Avigayil's physical therapy is working! She was able to climb and stood on a therapy step on Friday. The better news is that she did it to reach some soup because she wanted to eat (by mouth!). The bad news is that she pulled the bowl of hot soup down on herself and now has 2nd degree burns. We ended up in an ambulance back to the hospital Friday night.

We saw the plastic surgeon yesterday and they are optimistic. The said that they feel that most of the skin will grown back within a week and then she will go for OT. They also do not think there will be scaring. She is currently in a bit of pain but they don't think there will be any permanent damage.

So, in light of our crazy situation, I present you with ways to tell you spend too much time in the hospital:

You are calmer then the medics in the ambulance.

When you show up at the ER everyone knows your name and welcomes your with hugs.

The receptionist no longer asks for your information or ID numbers, just if she is hear for the same problem as last time.

You get to skip the line straight to triage.

While the nurse types in your baby's current issues, you take all her sats by yourself.

The nurse then says "you can go to your usual bed."

You don't need the nurses to show you where things are, you just get them yourself.

They nurses know your baby's medications and doses by heart.

You no longer need to give the doctors a medical history when you are admitted.

You know every staff member by name from the doctors to the janitors.

The nurses aide knows just how your baby like her bath and what makes her smile.

She has a favorite hospital clown and everyone knows it.

The x-ray tech says "Hey, it looks better than last time!"

You get a staff discount at the coffee stand.

Every respiratory therapist in the hospital has worked on your baby....more than once.

The medical receptionists know your voice on the phone and some of them even recognize your number on the caller ID.

Somehow other parents just know to ask you where the coffee cups are kept and what the code is to the linen closet.

No one gets upset when you silence the monitor alarms of use the suction without permission.

You know the code to get an outside line on the hospital telephones.

You know which elevators to use at what times to get where you want to go fastest and you use all the staff shortcuts as well.

Your diaper bag has the essentials for an overnight stay in it all the time, just in case.

You have the hospital menu memorized and know what to expect every day of the week.

You have the staff schedules memorized and notice when someone takes an unusual day off.

The hospital staff whatsapps about you to each other.

When you run into someone in the hallway they say "I heard you where here."

Staff from other departments come by just to say hello.