Please Daven for Avigayil Bas Rivka Batya.

Please Daven for Avigayil Bas Rivka Batya.

Friday, December 30, 2016

Home

B"H Avigayil was discharged! She is so happy to be home with her siblings and they are happy to see her too. She still has a way to go but is doing much better. There is a concern that she may have had a setback in her breathing since she was sick for so long but we will not know for at least a couple of weeks if this is her new baseline or if she is going to recover further. In the meantime we just keep davening.

Wednesday, December 28, 2016

Channukah and Chesed

Mi kamocha Yisrael, Who is like you, Yisrael! The pediatric department is always a big recipient of chesed but when there is a holiday people seem to go all out. We came in on the first morning of Channuka. That first day we where offered no less that 5 sufganyot (traditional jelly doughnut ) and given enough cand and pekalach (bags filled with treats and prizes) to last all week.  It didn't stop on Sunday though. Monday and Tuesday brought more sufganyot and pekalach, decorated cookies, toys, bubbles, driedles that light up, a tira (Avigayil has been wearing it ever since) and a box with 3 pairs of earrings  (her sisters will enjoy that).

We have been visited by multiple people dressed in costume, clowns (part of Shaare Zedeks amazing medical clown program), a goup of girls dressed as Minnie Mouse, groups of people singing and playing guitar, and more. These visitor come from all walks of Israeli society from Charradi/Chassidish to secular. Some are from seminaries and yeshivot, some are from local companies, schools, youth groups, and social clubs. Some people just come on thier own wanting to make this time a little happier for the children.

As some of you know we moved to a new community and city this summer.  The amazing women of Beitar Illit are sending dinner to the house every night. Some friends from Har Nof have come to visit in the hospital as well. One fantastic friend and former babysitter came to stay with Avigayil for an hour so I could have a break and run to the shopping center across the street.

So many times I have been asked how we go through these challenges without family.  My answer is always  "We make family. " These are some examples of that. Bh, It is hard to be truly alone in Israel unless you work hard to be.



Avigayil has been improving. They are hoping to move her from the machine to oxygen today.  We are hoping that her pco2 has come down. They will be testing that again today as well.

Tuesday, December 27, 2016

In The Hospital

I have not sent out an update in a while.  Avigayil has had a rough winter.  She has spent more time sick than not. Most recently she has been sick for the past month. She has had 2 rounds of antibiotics and multiple rounds of steroids. The steroids turn her into a tiny manic depressive.  She gets a high from them and goes a bit nuts until the exhaustion of being sick takes over and she passes out on the floor in a very small heap of heavily breathing baby.


From Shabbos afternoon until Sunday morning she had 5 episodes of hypoxia, turning blue. She lost half a kilo in 2 1/2 days.  She is currently back in the hospital.  Her pco2 is very high and she is on the Vapotherm breathing machine. Yesterday they told us that she has influenza  (despite having had her flu shot) and RSV (AGAIN! ). Well, at least now we know why she keeps turning blue.

Please continue to daven for Avigayil bas Rivka Batya.  Thank you.