Still Tough

Avigayil is still having a very rough time. Her breathing is very labored and she is still on 60-70% O2. She started to vomit all of her meals and can no longer eat by mouth at all. Even after her first feeding by NG tube she still vomited the majority of her meal. She is now being given her feed over 2 hours. The idea is that if it goes straight into her stomach very slowly then her breathing will not effect the feeding in such a way that she will vomit. So far today this has worked. We are understandably frustrated by the lack of progress and the setbacks. The last several days have been very hard. She needs lots of teffilos (prayers) right now and we appreciate everyone's thoughts and good wishes for her. The good news is that she did well with her physical therapy today and we are hoping that if she can keep doing well she will start to make some progress. She spent a half hour with her oxygen saturation over 90% and had 5 spontaneous coughs during the therapy. We hope this can continue.