Today was bittersweet. Avigayil is doing better. Her oxygen concentration is down lower than it's been for almost three weeks and she has been keeping her saturation up longer. We are thrilled to see some progress after so long a time without any progress at all. The physical therapists have tried a new technique and it really seems to help. She also took her first real deep breath today!! I wanted to cry I was so happy.
In the NICU you are constantly told to be patient. While other mothers are snuggling their babies and showing them off to friends, we are cuddling a plastic box and navigating a jungle of tubes and wires. We want nothing in the word more than to take our babies home. Just when we (myself and a couple other long term NICU mothers) were starting to say that we had run out of patience for being patience, Hashem reminded us how to find more. One of the babies in the NICU died today. He was premature and very sick. They transferred him to Shaarie Zedek in hopes of saving his life since it is the most advanced NICU in the country. The doctors tried and the nurses fought, but Baby Boy lost his battle. There is nothing so sobering as the death of a child. For his parents it is a tragedy beyond imagination, for the doctors and nurses a wounding loss. For the close group of mothers it is a sobering reminder that when we are at the end of our rope and ready to scream, when we feel like we are getting nowhere and life is beating us from every angle, that at least we still have hope. At least we still have our beautiful babies to pray for.
May Hashem send a complete and speedy recovery to our daughter and to all the sons and daughters of the NICU. May He help the parents to find comfort, strength and faith. Refuah Shleima L'kol Cholie Yisroel (A complete healing to all the sick of the children of Israel), Amen!
No comments:
Post a Comment