Today marks a milestone we never wanted to reach. 100 days in the NICU. As I look back there have been a lot of ups and downs. A lot of tears and happy moments.
The last few days have been crazy. Yesterday, the people in charge of the home hospitalization came. After all was said and done, they said we would leave today. We scrambled to get everything done. Equipment, meds, diapers. Then late in the afternoon I got a phone call. There was a bureaucratic problem. After what felt like a million phone calls, thing where mostly worked out.
When we came this morning, one of the thing left to work out was the ambulance home. The insurance company would not pay for an ambulance, none of the transport companies would take her and the hospital and the insurance were fighting it out. That is when one of the doctors realized that we hadn't tested to see if Avigayil would be OK on just oxygen for the time it would take to get her home. Everything hinged on this test. If she failed everything was mut since if she couldn't manage to get home then she couldn't leave the hospital. So we turned off the machine and held our breath.
She did well. She did very well. In fact, she did so well that the doctors decided to keep her in the hospital one more night and see if she can manage on only the oxygen. So far she has been off the machine all day and has had very good saturation levels. IY"H (Please God) she will go home tomorrow on only oxygen! She will not need the home hospitalization that we worked so hard for. The doctors are baffled, it is literally a miracle.
Two days ago, the prongs came out of her nose and she started to crash. Yesterday her x-ray showed her lungs looked the same. Today she went from being on a flow of 5 lpm to nothing, just like that.
IY"H Our baby girl will come home for Shabbos tomorrow and for the first time in almost six months, our whole family will be together.
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