Avigayil has been making some amazing progress. She was moved back to the pediatric ward and they are working hard to get her home as soon as possible (she has been in the hospital for a week and a half now). Her breathing has really improved and she is close to her baseline. She is back on her breathing machine and slowly increasing her food intake. She is also off a lot of the medication and weening off the steroids.
Unfortunately, she has dropped half a kilo in weight. This will also set her breathing back. She will need to be on her machine 24/7 for a while. We don't know yet if there will be setbacks in her physical development or feeding therapy but it is possible so we are prepared for that.
All in all we are moving in the right direction and much faster than anticipated, baruch HaShem.
So happy to hear! We pray she continues to improve.
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