This time it's Thursday. Avigayil has not been gaining weight and has been eating only 1/3-1/2 of her minimum nutritional requirements. They are starting her on a medication she had been weened off of in hopes that it will help her to eat again. She now has until Thursday to start eating and gaining weight. If she does not she may need to have her feeding tube put back in. While our pediatrician said he would do his best to see if he could get it done as an outpatient, chances are that the big bad wolf of rehospitalization would rear it's ugly head.
In the meantime, we will be praying and feeding and our pediatrician will be talking to the pulminologist to see what the best way to handle everything is. Please keep her in your thoughts and prayers over the next few days. So far, we have beat the last few deadlines, with G-d's help, we will beat this one too.
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