Improvement

Avigayil currently has pneumonia however, Baruch Hashem, She is doing better. Her last x-ray showed that her lungs have improved and her blood work was very encouraging. The Gastro was happy with the way the PEG is working and the feeding therapist not only gave us the green light to try to move ahead but is also trying to help us get set up with home therapy for feeding and speech.

We also got permission from the Pulmonologist to take Avigayil on brief outings close to home. Next week we plan to try to take her to the park for half an hour if she is breathing well.

While she has not gained back all the weight she lost she is gaining. She is still not back to herself completely and didn't manage to do any of her physical therapy this week but all in all, things are looking up. We are davening that she should continue to improve.

Thank you

Thank you to everyone who has helped and davened these past two weeks.  While Avigayil is not quite back to herself  (they say it will take some time ) since she is on ishpuz bayit ( home hospitalization ) we are able to be home for pesach and have her doctors finish things here. Although I may not have answered each one, your comments, emails, texts, and messages, we appreciated them all. I hope this chag brings nissim not only to us but to all of you as well.

Home Again

Avigayil is thrilled to be home for her first sedar.

Out of Intensive Care

Last night Avigayil moved out of intensive care.  She is going back on her breathing machine today (instead of the hospital's). She has had the last dose of antiviral and is being weaned off several of the medications.

She still needs blood tests to monitor her kidneys and she is trying to get back to normal amounts of food. She has lost 10% of her body weight. She still has a way to go but has come a long way.

We are hoping to be home in time for sedar.

Slowly, Slowly Down the Road to Recovery

Avigayil's kidneys are holding up and she is getting better slowly. She is interacting with people and although not quite back to herself and is still fairly uncomfortable  she has come a long way.

She has a partially collapsed lung due to the virus and is getting physical therapy 3 times a day. They are planning to give her the 3rd and final dose of antiviral tomorrow. We are hoping that she will move out of intensive care some time by the middle of the week.

Thank you to everyone who has been davening for her. I know your prayers are making a difference. Please continue to daven.

Update

Avigayil's kidneys seem to be tolerating the antiviral for now.  If her kidneys keep doing well she will have another dose on shabbos along with medications to protect her kidneys. Please keep davening for her.

Antiviral

They are about to administer the antiviral. Hopefully this will turn things around. She is in serious condition and really struggling.  There is a significant risk to her kidneys from the medication. The treatment is rarely given  (only in the most serious cases) and required approval from the ministry of health. They then sent the medication to the hospital.

Please keep davening that it works and that it doesn't do damage.