We are home again, B"H. The diuretics did not work as we had hoped but restarting the steroids did. She is breathing much easier.
We did get a chance to see how well she knows what is going on. When the doctors came to take her blood she started to cry, even before they started. She also took the doctor's glove and threw it! That's my girl, it's that determination that is keeping her going.
The good news is that she has started to eat!! We are working with the feeding clinic and have started trying to get her to eat by mouth again. The hope is that we will at one point be able to remove the NG tube. So far, she is doing well with it - when she is not over tired or having trouble breathing.
Spunk is good. May she continue to improve, preferably with many more steps forward and not so many steps back. Syracuse is still cheering her on.
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