Home Again

And she couldn't be happier.

There's a baby in ICU at Haddassh Har Tzofim that is in desperate need of "L-emental" formula, they say it is pikuach nefesh.  Made in USA and hard to get here.  Anyone that knows where to get it or has is asked to call 0529580068.

Round And Round We Go...

Back to the hospital. Avigayil was having trouble keeping her o2 sats up so we are back for another overnight stay.

Home Again

We are home again, B"H. The diuretics did not work as we had hoped but restarting the steroids did. She is breathing much easier.

We did get a chance to see how well she knows what is going on. When the doctors came to take her blood she started to cry, even before they started. She also took the doctor's glove and threw it! That's my girl, it's that determination that is keeping her going.

The good news is that she has started to eat!! We are working with the feeding clinic and have started trying to get her to eat by mouth again. The hope is that we will at one point be able to remove the NG tube. So far, she is doing well with it - when she is not over tired or having trouble breathing.

And we're back

Friday Avigayil was discharged home in time for shabbos. Today, 2 days later, we found ourselves in an ambulance on our way back to the hospital again.

She is getting treated with diuretics to hopefully help drain some of the fluid in her lungs. Depending on how the night goes they will decide if we can go home tomorrow or if she needs to be admitted.

Update

Avigayil has been stable for the past 36 hours. She had a good day today and is finally breathing better. She is responding to the steroids.  Tomorrow she will have a trial on just o2 to see if she can make the trip home (her new machine does not work on batteries ). If all goes well we hope to return  tomorrow to home hospitalization.

After a week at home, we are back at the hospital. When we got here Avigayil was barely breathing. She is currently listed in serious condition. Please daven for Avigayil bas Rivka Batya.