Avigayil's breathing on the new machine is like night and day. Her breathing slowed, her oxygen saturation where more stable, she had more energy and slept less (she was sleeping more than 20 hours a day). She even started to play with things and smile a little. This was a big one for me since she is generally such a happy smiley baby and she hadn't smiled in over 3 weeks.
Then she got sick.
She has a fever, vomiting, diarrhea, difficulty breathing. She had been doing so much better and they are not sure yet what caused the complete turn-around. Several doctors have seen her including the head of pediatrics. They are trying to work out what to do with her. In the meantime she is on a special food for the diarrhea and on IV fluids because she was dehydrated and losing weight.
On the side of the insurance. They told me today that they are approving a package for us that will include not only all the machines that she needs but also home visits from doctors and nurses. We are really happy with this development and we think it will do her good.
In the meantime, we are in a very nice large private isolation room and are now just waiting for her to get better so we can go home. Everyone (including the insurance company) wants to be cautious about sending her home. They only want to do it once she is doing much better. So we will wait. Please keep daving for Avigayil bas Rivka Batya.
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