Wednesday, Avigayil was admitted to the pediatric day hospital at Shaarie Zedek. There she saw a pediatric gastroenterologist, a pediatric dietician (yep, a dietitian for babies), her pulminologist, as well as have a series of tests. The day hospital allows her to get all of this as if she was in the hospital but to still go home at the end of the day.
Aside from looking into her health we also learned that Avigayil likes clowns and balloons. She was given her own Mylar balloon and even a tambourine. I got soup and cake. (I guess the cake was to make up for the tambourine.)
They are making some changes in Avigayil's diet and her meds. Hopefully that will help her breathing and help her to start to gain some weight.
What is really worrisome however, is the level of CO2 in her blood. It is much higher than the doctors are comfortable with. To combat this they have decided to give her another short course of steroids and on Sunday, unless they see a major improvement in her breathing, she will have to go back to the hospital and repeat the blood test. If they do not see a major improvement in her CO2 level then they will admit her to the hospital to try to find out why. We are very worried and are davening hard for her. Please keep her in your thoughts and prayers.
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