Please Daven for Avigayil Bas Rivka Batya.

Please Daven for Avigayil Bas Rivka Batya.

Monday, January 9, 2017

Life Blood

I'm sure most people don't realize this but January is Blood Donner Recognition Month. Donating blood is (almost) painless and usually takes around 20-30 minutes. Some people have never done this and some people donate every two months.

While in the NICU Avigayil received several blood transfusions. They where life saving. Somewhere out there there is a an anonymous person walking the streets. He or She does not know it, but I owe them the greatest debt of gratitude any parent could have. He or She walks around going about daily life and has probably long forgotten giving blood. For me, every time I look at my daughter I will bless that person. Without their selfless act she would not be here. Mr./Mrs Anonymous, you are my hero!

I would like to take this chance to encourage anyone who is eligible (eligibility depends on criteria in your country) to step up and save a life today! I personally can't think of a better way to spend half an hour. In Israel you can donate blood by contacting your local MDA station or hospital. In the US contact your local Red Cross or hospital.

Leave me a message and tell me about your blood donation experience. I'd love to hear it.

Friday, December 30, 2016

Home

B"H Avigayil was discharged! She is so happy to be home with her siblings and they are happy to see her too. She still has a way to go but is doing much better. There is a concern that she may have had a setback in her breathing since she was sick for so long but we will not know for at least a couple of weeks if this is her new baseline or if she is going to recover further. In the meantime we just keep davening.

Wednesday, December 28, 2016

Channukah and Chesed

Mi kamocha Yisrael, Who is like you, Yisrael! The pediatric department is always a big recipient of chesed but when there is a holiday people seem to go all out. We came in on the first morning of Channuka. That first day we where offered no less that 5 sufganyot (traditional jelly doughnut ) and given enough cand and pekalach (bags filled with treats and prizes) to last all week.  It didn't stop on Sunday though. Monday and Tuesday brought more sufganyot and pekalach, decorated cookies, toys, bubbles, driedles that light up, a tira (Avigayil has been wearing it ever since) and a box with 3 pairs of earrings  (her sisters will enjoy that).

We have been visited by multiple people dressed in costume, clowns (part of Shaare Zedeks amazing medical clown program), a goup of girls dressed as Minnie Mouse, groups of people singing and playing guitar, and more. These visitor come from all walks of Israeli society from Charradi/Chassidish to secular. Some are from seminaries and yeshivot, some are from local companies, schools, youth groups, and social clubs. Some people just come on thier own wanting to make this time a little happier for the children.

As some of you know we moved to a new community and city this summer.  The amazing women of Beitar Illit are sending dinner to the house every night. Some friends from Har Nof have come to visit in the hospital as well. One fantastic friend and former babysitter came to stay with Avigayil for an hour so I could have a break and run to the shopping center across the street.

So many times I have been asked how we go through these challenges without family.  My answer is always  "We make family. " These are some examples of that. Bh, It is hard to be truly alone in Israel unless you work hard to be.



Avigayil has been improving. They are hoping to move her from the machine to oxygen today.  We are hoping that her pco2 has come down. They will be testing that again today as well.

Tuesday, December 27, 2016

In The Hospital

I have not sent out an update in a while.  Avigayil has had a rough winter.  She has spent more time sick than not. Most recently she has been sick for the past month. She has had 2 rounds of antibiotics and multiple rounds of steroids. The steroids turn her into a tiny manic depressive.  She gets a high from them and goes a bit nuts until the exhaustion of being sick takes over and she passes out on the floor in a very small heap of heavily breathing baby.


From Shabbos afternoon until Sunday morning she had 5 episodes of hypoxia, turning blue. She lost half a kilo in 2 1/2 days.  She is currently back in the hospital.  Her pco2 is very high and she is on the Vapotherm breathing machine. Yesterday they told us that she has influenza  (despite having had her flu shot) and RSV (AGAIN! ). Well, at least now we know why she keeps turning blue.

Please continue to daven for Avigayil bas Rivka Batya.  Thank you.

Thursday, September 29, 2016

Rosh HaShana

As my baby lay fighting for her life, I stood in the shul of the hospital on yontif next to other parents who's babies where also barely holding on. We begged Hashem for the life of our children and the lives of our neighbor's children. Our tears fell like rivers to the Rabbenu Shel Olam as we cried out for mercy. We beseached Hashem "Please bring the moshiach! Why Hashem, are there so many other mothers like me? How many mother must cry for their children until it ends? How much longer must you suffer in pain along with your children? Please Hashem, let this one's baby survive the next surgery, let this one's baby survive the night."

As we approach Rosh Hashana we all have a special opportunity to help make that happen. There is a belief in Judaism that when one davens for another person in a similar situation, his prayers are answered for his friend and for himself. This year, as we stand in judgment, take a moment to think about thoes in your community suffering similar trials as you. The one who needs a job or hasn't yet been blessed with a spouse or with children. The one who needs a yeshua that you also need. Stand before Hashem and advocate for your friend.


We would like to wish everyone a Shana Tova. It should be a happy and healthy year for everyone. 

Tuesday, September 27, 2016

Still Sick

Avigayil is still sick. She is at home but still on oxygen all day. Her fever came back and the doctors started her on Zinnat, a particularly strong antibiotic. She seems to be responding to it as her oxygen requirements are dropping and her fever is much lower however, her lungs are still full of mucus and she is wheezing like mad. Please continue to daven for Avigayil bas Rivka Batya.

Wednesday, September 21, 2016

Home

B"H Avigayil is home. She is very tired and sleeping most of the time and still having difficulty breathing but we can do everything she was getting at the hospital here at home. She is still on steroids and oxygen and getting larger than normal doses of ventolin. Every time she gets one of these bad viruses I feel like the recovery time gets longer. We know that this winter will be rough because of her new exposure to children. We are going to try to be hyper vigilant and try to catch things early. As they say, there is no way around the coming storm but straight through. Our home is that it will be light rain as opposed to a hurricane.